Making it to Fifty is no big deal I hear you say. Folk do it all the time!
But trust me when I tell you- for me,it has indeed been a fair way to 50
and in the past 5 years much of the journey has been about trying to negotiate
out of the ROUGH.
And I am not talking about a bit of longish fescue here.
I'm talking serious tussock and thick gorse!
How rough?
In February 2007 I was diagnosed with squamous cell carcinoma in my right tonsil with possible spread into the wall of my throat. After a selective neck dissection (this involves stripping the lymph from tissue in the neck to varying degrees depending on how far they think the cancer is likely to have spread- in my case I had 3 levels out of a possible 5 stripped ) the lymph was found to be clear. However a couple of cancer cells were found in the scoop of tissue taken from the throat wall- a miniscule amount but not in the optimal place according to the radiation oncologist.
His recommendation was to radiate the area. Reading up on the short and long-term effects of radiation made this a very unattractive proposition to me with my background in alternative medicine. I made the decision to do all I could with herbs, diet,meditation,qigong and anything else that suggested itself to me to try and heal myself.
By the beginning of 2008 I was feeling strong and recovering well from the invasive surgery and making plans to travel, even booked the tickets. I was envisioning a year of new adventures and vibrant health. I had started a new teaching job in a private language school as well as working with some individual learners in the evenings. I was feeling quietly optimistic about life. But I had a nagging discomfort in my right ear- not pain exactly but annoyingly present.I thought I better mention it at my next monthly check-up.
And then the ball was lost!
At my appointment on a Thursday in February 2008 I mentioned the ear pain and the registrar, on putting the little camera up my nose and down into my throat for a look immediately called the specialist. The camera goes back up my nose ."It looks as if it is back" says the surgeon....."Cancel everything for next week we will do a biopsy on Monday morning"
And so the story goes. It is a long one........................The cancer was back and had spread into my soft palate.
The treatment for this type of cancer is draconian. In brief it involves:
- making an incision from the bottom lip to the base of the ear
- sawing through the jawbone
- opening up the face so they can get into the throat
- removal of large portion of the throat wall and soft palate and possibly some of the tongue
- plastic surgeon removes a flap of skin from the inner arm along with the artery and plugs this into the hole left behind in the throat.
- Skin from the leg is taken to fill the gap left on the arm.
- I will have a tracheotomy tube to breathe through and a nasal-gastric tube to feed through
- I will not be able to speak at first
- most of my teeth will have to be removed prior to surgery
- 6 weeks after surgery the radiation and chemotherapy will begin
- the operation will take about ten hours
It didn't.
The whole procedure had to be repeated .
The newly healed incisions were re-opened.
Another flap of skin was taken from the other arm and more skin from the thigh to fill the gap.
This time I am on the operating table for about twelve hours.
Lots of blood is lost.
I need a blood transfusion but this does not happen for several days.
This is a very difficult surgery to go through and having done it once does not make it easier to do a second time.
I am the plastic surgeons first failed flap!
Oh special me!
I am lost in a world of pain,drug haze and sheer endurance.
There is nothing left in me for this fight. Without my loving support team I simply would have perished.
Tough though all of this was I will look back on it as the easier part after having gone through the radiation/combined chemotherapy and the suicidal depression that followed.
There was a year of living with a stomach peg through which a foul-smelling liquid food was pumped into me all through the night.
And a three year period to wean myself off all the drugs I was prescribed to cope with my physical,
mental and emotional issues post-treatment.
Of course this is just a very brief over-view of the past five years of my life.I always meant to write a book about this journey and tried to keep a journal throughout the treatment period .But somehow every time
I sat down to write something the memories were still too raw and vivid.
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Default setting post radiation treatment. |
As one of my excellent brothers observed in his birthday card to me: "Bet there were days a few years ago when you thought you wouldn't make the half century".
Indeedy! and that is why I say it has been a fair way to 50.
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Making light after 3 weeks of radiation. |
You have me gripped! Geez it was shitty wasn't it? Im keen to hear about your fairway adventures. love, Nikki
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